• Welcome To Georgina’s Gang

    Georgina's Gang is a Guernsey registered charity (no. 316) dedicated to those in the Bailiwick Of Guernsey affected by the condition Niemann Pick Type C (NPC). NPC is an extremely rare and devastating condition. Currently there is only one person in the whole of the Channel Islands affected by the condition - Georgina Pearce (we hope it stays that way).

    The home page of this website will be used to display the latest updates - please scroll to see all of them. If the update is worthy of a dedicated page there will be a link in the LATEST NEWS titlebar directly above this section.

    Please use the links provided to see more about the charity and Georgina, previous news articles & updates, links to other sites and information on how to contact us or make a donation.

  • Pages

Donations in lieu

We would like to thank everybody who donated in lieu of flowers for Georgina, an announcement will be in the press shortly. Georgina loved to help others and so we know she will be extremely proud of all of you.

The charity has been approached for assistance, which this will go towards….more on this shall be revealed soon

Remember, if there is anyone you know who might need specialist equipment or a helping hand just contact us x

HAPPY BIRTHDAY GEORGINA XX

We hope whatever you are doing wherever you are you are having the most amazing 20th birthday.  We love you lots and are celebrating with you xx

Funeral arrangements

Thank you all for your support. We have read and appreciate every message

Funeral arrangements have been made and will be held at Castel church on Wednesday 9th November at 1pm – All are welcome and please wear a hint of pink. donations in lieu of flowers to Georgina’s Gang would be gratefully received

Rohais de Haut will be made one way from the bottom with parking available on the right hand side of the road please as well as the new cemetery and of course the church car park

Thank you again X

Goodbye Georgina our Angel

After a long and courageous fight Georgina passed away peacefully yesterday surrounded by her loved ones. R.I.P angel

 

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Alex McClean

Georgina’s Gang are gratefully receiving donations in memory of Alex McClean.  There are few words that we can say regarding the sudden and shocking passing of Alex.

Alex was a big supporter of Georgina’s Gang and assisted in fundraising, along with the Sarnians MCC.  The love and respect that Alex received was down to him being such a genuinely decent person and many have felt the impact of losing him so suddenly.  We send our love and support to all his friends and family and thank them for sharing him with us x

Bingo Night – raised a massive £1,350!!

THANK YOU TO MAUREEN, CAROL, JOSIE AND ALL OF THE WONDERFUL PEOPLE WHO VOLUNTEERED THEIR TIME AND HELPED WITH THE RAFFLE PRIZES.  YOURE ALL SUPERSTARS!!!

 

 

 

 

28 August – Royal British Legion Hall, L’Islet

 

£1 per ticket – books available to buy on the night.  We had lots of fun last year and hope to do the same again this year so come along and join in with us.  As usual there will be a huge raffle with lots of fab prizes and the chance of course to win lots of money!!

 

Joshua’s Bed & Emma’s wheelchair

joshua1 josh2 wheelchair IMG_4019 IMG_4020In the last few months alone a total of £6,000+ has been spent on the specialist equipment that has been requested for Joshua and Emma.  Remember, we keep raising these funds to assist people who need the vital equipment that comes as such an expense.  We also like to donate to Niemann Pick UK for research into the disease.  Please read the ‘about’ tab for more information and remember to contact us if you have any questions or think we can help you

 

XMAS PRESSIE WRAPPING SERVICE

Please take a look at the attached. Staff from The Duke of Richmond and Old Government House Hotels are helping to raise funds for Georgina’s Gang, Jake’s Heartfelt Funds and Friends of Anthony Thomas

Go and get some wrapping done….you know you want to! Plus, importantly – there will be complimentary festive refreshments . Thanks to The Red Carnation Hotel Collection. We’re proud to be supported by such a fab team!

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GEORGINA’S GANG XMAS SHOPPING

We will be in town on Thursday 10th December and also on 17th late night shopping.  We will be selling our handmade goodies inc xmas displays and other xmassy bits.  Including some yummy treats.  We are excited to be in town on late night shopping and hope to see you all there :-) You will see us opposite Boots

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JOSHUA NEEDS A NEW BED

We at Georgina’s Gang are now focusing our fundraising efforts to purchase a much needed specialised profiling bed for this brave young boy Josh. We would like you to take some time to read a bit about Joshua and hope you can help us make this happy young boy become even more independent. The few pictures below show how much he has had to endure but he is still full of happiness, let’s help him continue along this path.

Josh was born with a very rare condition called Hemimegalencephaly (literally “half big brain”). This means that the left hand side of his brain didn’t develop properly and is of little or no use to him – the right hand side of his brain has to try and do all the work. The condition almost always results in serious epilepsy requiring surgery to avoid life-threatening seizures. Josh has had two brain surgeries at Great Ormand Street and also had to go through double hip surgery in 2014 to help him to walk.

Josh’s mum says: ‘The bed that Josh needs will provide him with a completely safe and comfortable environment. It will lower right down to ground level so that he can independently get out of bed, and it will raise right up to adult waist height so that we can change Josh safely and comfortably. It will have safety panes in case he has a seizure, but also bars at a higher level for him to pull up on, to help with his ongoing challenge to stand and walk unaided. This bed will completely change Josh’s life, and ours. He absolutely loves to stand with help and so being able to get in and out of bed by himself will be a huge step in his progress. We can’t wait to see how this everyday activity improves his development’.

Email us at georginasgang@gmail.com if you think you can help, or alternatively call 07781 116675 – we hope to see you all at Round Table Xmas Fayre on 22 November at Beau Sejour 10-4pm xx

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