Georgina, 2008 aged 11
This web-site has been set-up by the Guernsey charity Georgina’s Gang (Guernsey Charity number 316). The work of the charity is dedicated to raising funds for sufferers in the Guernsey Bailiwick of the incurable and devastating condition Niemann-Pick Type C (NPC). This genetic condition is so rare that currently there is just a single case diagnosed in the bailiwick. Therefore, it is dedicated to Georgina Pearce, our much loved girl who was diagnosed with the condition in 2008, when she was 11 years old.
The name Georgina’s Gang was chosen by her younger sister Jessica, 8. The charity was the idea of some very dear friends of Georgina, intended to take the pain and worry out of the additional expense of building nursing premises and purchasing the specialised equipment that Georgina needs as her condition deteriorates. It allows her parents Tania and Ian to concentrate on ensuring that the family enjoy their lives to the full. Tania and Ian cannot express their gratitude enough for such kindness.
They would like to make it known in no uncertain terms that they would like to build upon the success of the charity and keep Georgina’s beautiful face at the forefront of minds by raising funds for other worthy Guernsey causes in the future. They are determined to repay the kindness shown, although for now they must of course concentrate on the day-to-day care for Georgina and their family. This has been a key message conveyed by Ian and Tania at both Hint of Pink balls arranged by the charity.
It was the express wish of Tania and Ian in setting up the charity that a proportion of the funds be donated regularly to the Niemann-Pick Disease Group Uk in aid of research into a cure for this, and other similar diseases.
- Georgina & Jessica, 2008, 11 & 8 years old